Germaine Clark had a cause in mind when she made the decision to run in the Destination Races Half Marathon.
Germaine’s friend, Faye Dilgen, has a 14-year old son, John Hudson Dilgen, who was born with Epidermolysis Bollosa. EB is a devastating and life-threatening genetic skin disorder that affect children from birth. John requires medical attention on a daily basis for his condition.
Having heard John’s stories and seeing news and educational videos for many years, Germaine felt a deep connection to this cause and wanted to be a part of it.
With the help of a donation website, Germaine and a small group comprised of Faye’s daughter and friends ran together as “Team EB,” raising nearly $4,000 for the EB Research Partnership.
Germaine chose to run for the EB Research Partnership because they are the largest nonprofit dedicated to treating and curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth. The EB Research Partnership has raised over $12 million for innovative and commercially viable treatments since our founding in 2010. In 2016, the EB Research Partnership funded 17 research projects recommended by their Scientific Advisory Board. The EB Research Partnership has a goal to fulfill $25 million worth of research funding needs over the next three years.